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Severely disabled children affected by nursing shortage in NH

(MyFoxBoston.com) -- Local families are calling for change after a nursing shortage has left them without anyone to care for their severely disabled children.

Two New Hampshire mothers are now turning to state lawmakers for help after they said staffing agencies have been unable to find nurses to provide in-home care that is covered under Medicaid.

"It's scary, I get worried about what if something happens to me, being the only one to take care of him?" Heather Donnell told Fox 25.

Donnell's five year old son, Lucas, has Down Syndrome and a severe feeding and swallowing disorder.
As his medical condition worsened, Donnell said she was forced to quit her job to care for Lucas full time.

Medicaid covers 80 hours of in-home care each week for Lucas, but Donnell said local staffing agencies told her there is simply no one available to help.
"It's extremely challenging. It wears on you, it tears you down and it doesn't leave a lot of time for anything else," Donnell said.

Another mother, Audrey Gerkin, said she also cannot find a nurse to care for her 14 year old daughter, Lexi.

"It is so incredibly frustrating," Gerkin said. "The bottom line is that these are services we are approved for, and we are not receiving them."

Gerkin blames the nursing shortage on low reimbursement rates from Medicaid, that make it difficult for agencies to hire and retain qualified nurses.

"They do not want to take home healthcare jobs because there is much more available in the hospitals and other offices," Gerkin said.

Gerkin and Donnell have teamed up to lobby state leaders for change, and plan to attend a meeting on December 10 with the Governor's Commission and medical care organizations about the issue.
The mothers said they've also worked with legislators to sponsor a bill in the Senate that would create a commission to study the shortage.

"We're definitely not the only family going through this," Donnell said.

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